SMA-ll Steps to Keep Moving Forward

A personal piece about SMA challenges & solutions by our founders, published on The Star, MalaysiaKini & CodeBlue

Living with SMA in Malaysia Report Launch
To watch the recording of our event, you can visit our YouTube channel for the full video.
Guiding you to better and proper SMA Care
Learn to properly care for and to improve the quality of life for those with SMA.
Making a big difference in SMA

The resources on this website are helpful to healthcare providers who are just learning about SMA.

Learn more to help in preventing SMA

The resources on this website are helpful to healthcare providers who are just learning about SMA.

Living With SMA
A diagnosis of Spinal Muscular Atrophy (SMA) will probably make you feel lost and overwhelmed, not knowing what to do or who to turn to.

While it will be a challenging journey for people with SMA and their families, always remember that you are not alone. Reach out to others and fill this long journey with hope together.

Resources

Finding out that you or your child has SMA will be a new chapter in your family's life. The resources here can help to be your "compass" in this new journey. 

Find out how to manage and care for your child's SMA, ask the right questions to doctors, reach out to others for support, and more.

Our Stories

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SMAcare.org is not a medical referral site and does not recommend or endorse any particular provider or medical treatment.

No information on SMAcare.org should be construed as medical and/or health advice.

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