My SMA Diary

This book is made specifically for parents of children with Spinal Muscular Atrophy (SMA) and to be used by healthcare providers in filling vital information during the child’s follow-up visits to the hospital.

There are two parts to this book. Part 1 is a comprehensive guide, consisting of important information about SMA and Part 2 is a record of medical information and assessment of your child. A Malay translation is provided for Part 1 of this book only. 

As your child has SMA, you are being provided with this book to help you learn more about this disease and help your child with his/her journey. The diagnosis may be overwhelming, but we are here to assure and help you through this journey.

The English version of this book to help you learn more about SMA.

The Malay translation of this book to help you learn more about SMA.

Download My SMA Diary:

English version

Bahasa Melayu version

Think small, act big.
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No information on should be construed as medical and/or health advice.


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