When your child is found to have Spinal Muscular Atrophy it will come as a major shock and challenge. There is no easy way to deal with this and each of us will respond differently. The key to moving forward - to helping your child and family - is to network with and meet other parents to share ideas, learn and get emotional support - this is vital. There will be many different specialists and therapists to see; if possible, find one person, whether a paediatrician, therapist or experienced NGO liaison, who can serve as a key coordinator to overview and plan therapy needs for your child.