Expert Views

A Message To Parents:

When your child is found to have Spinal Muscular Atrophy it will come as a major shock and challenge. There is no easy way to deal with this and each of us will respond differently. The key to moving forward - to helping your child and family - is to network with and meet other parents to share ideas, learn and get emotional support - this is vital. There will be many different specialists and therapists to see; if possible, find one person, whether a paediatrician, therapist or experienced NGO liaison, who can serve as a key coordinator to overview and plan therapy needs for your child.

Dato’ Dr Amar-Singh HSS, Senior Consultant Paediatrician Ipoh, Perak, Malaysia

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